Holoprosencephaly

When we first received my son’s holoprosencephaly diagnosis, I asked why me? Why was this happening to our family? What did we do to deserve this? This is not what I pictured for my two boys. They would never be able to play together, as I had envisioned. Dustyn would always have to stick up for his little brother, protect and take care of him.

When we first received my son’s holoprosencephaly diagnosis, I asked why me? Why was this happening to our family? What did we do to deserve this? This is not what I pictured for my two boys. They would never be able to play together, as I had envisioned. Dustyn would always have to stick up for his little brother, protect and take care of him.